EDITORIAL STANDARDS

HOW WE GET IT RIGHT. and how we fix it when we don't.

The standards we hold ourselves to when publishing information about moyamoya disease. Citation rules, correction procedure, review process, and how to reach us if something on the site is wrong.

AUTHORSHIP

Who writes our content.

Two voices, clearly attributed.

Vince Murdock is the lived-experience author on this site. He writes and bylines the medical pages about moyamoya disease and the personal pages about his own story. Vince was diagnosed with moyamoya in September 2019, underwent an eight-hour brain bypass at Stanford on 13 November 2019, and is the first professional athlete to have moyamoya surgery. His perspective is patient-led, not clinical.

The Miles for Moyamoya team writes the research-heavy posts where Vince has not directly contributed: round-up articles, news coverage, awareness campaigns, and pages that pull together sources Vince has not personally read end-to-end. Where a page is team-authored rather than Vince-authored, the byline says so.

We are honest about this distinction. Lived experience is not the same as a medical degree, and a team write-up is not the same as a first-person account. Both are valuable. Mixing them up would not be.

How we cite sources

We cite from authoritative medical sources. Our default reference set is NIH/NINDS, NORD, Mayo Clinic, Stanford Moyamoya Center, Boston Children's Hospital Moyamoya Program, the AHA/ASA 2023 Scientific Statement, and peer-reviewed PubMed literature.

Every factual claim about prevalence, surgical outcomes, recurrence risk, or population data is hyperlinked inline to the underlying source. Substantive pages also carry a full sources list at the bottom so readers can scan the bibliography in one place.

We do not invent statistics. If we cannot find a source for a number, we do not publish the number. If a source contradicts a previously published claim, we update the page and note the change in the "Last updated" line.

CORRECTIONS

How to report an error.

If something on this site is wrong, we want to know. Here is what we commit to.

If you spot a factual error, a stat that does not match its source, a date that is wrong, or a citation that has been superseded by newer research, please contact us with the page URL and what you believe is incorrect.

  • Acknowledge your report within 48 hours.
  • Update the page within 7 days of confirming the correction.
  • Show a "Last updated" date on every substantive page so readers can see when content was last reviewed.
  • Note material changes in a brief revision line at the bottom of the affected page.

We treat every correction request seriously, even when the correction is small. The credibility of this site rests on the accuracy of its medical content. Catching an error and fixing it openly is how that credibility is maintained, not erased.

REVIEW

Our review process.

Honest about where we are and where we are going.

We are in the process of establishing a clinical advisory board for medical-content review. Until that board is formally in place, content is reviewed against the published medical literature and the authoritative sources we cite. Every medical page on this site can be traced back to the NIH, AHA/ASA, Stanford, Boston Children's, NORD, or peer-reviewed literature it draws from.

We do not claim "medically reviewed by [clinician]" anywhere on the site until that reviewer is real, named, and credentialed. The Moyamoya Foundation, a peer organisation in the moyamoya non-profit space, holds NORD Platinum 2026 status. We are working toward the same level of transparency and governance.

When the clinical advisory board is formed, we will list its members on this page and add a "Medically reviewed by" line to pages they have signed off on. Until then, you will see "Authored by Vince Murdock, moyamoya survivor" and nothing more.

Medical disclaimer

Information on this site is for awareness and education only and is not medical advice. Always consult a qualified physician about your specific situation. Nothing on Miles for Moyamoya should be used to diagnose, treat, or manage a medical condition without direct supervision from a licensed clinician familiar with your case.

Last reviewed: 25 May 2026.

References

Reference sources used across the site

Authored by Vince Murdock, moyamoya survivor Last updated 25 May 2026

  1. NIH: National Institute of Neurological Disorders and Stroke (NINDS)
  2. NORD: National Organization for Rare Disorders
  3. Mayo Clinic
  4. Stanford Moyamoya Center
  5. Boston Children's Hospital Moyamoya Program
  6. American Heart Association / American Stroke Association
  7. Peer-reviewed PubMed literature
SOMETHING WRONG?

FOUND AN ERROR?

If you are a clinician interested in joining our advisory board, a journalist with a query, or a reader who has spotted a mistake, we want to hear from you.